I'm Rachel, a 14 year old girl with OTC (Ornithine Transcarbamylase deficiency). I'm very brave about it, I've had a lot of achievements and I'm very proud of myself!
Ornithine Transcarbamylase Deficiency is a rare metabolic disorder. OTC affects my body's ability to get rid of ammonia, a toxic breakdown product of the body's use of protein. The accumulation of ammonia in my blood travels to vital organs in my body. Complications of OTC can include developmental delay, liver damage, brittle hair, mood swings and affect my performance at school. Having only one kidney further complicates my condition. Since my body cannot handle large amounts of nitrogen, a low-protein diet (38g/day) is essential. I also take sodium benzoate after every meal, which "mops up" excess nitrogen/ammonia.
Sunday, 20 March 2011
It's amazing
It's amazing how my parents are helping me get through this OTC and it's amazing that everyday I get to be greatful to the Lord for all the special food blessings he blesses me with! But it's also very interesting how everyday I go to school and I see people with billtong or KFC chicken and they start giving it away and saying they don't want it because they hate it or they say they just want to share it! They should be greatful that they can eat alot of their foods! Everyday I go to school and I'm brave, I'm so brave to watch people eat food that I would like to have so badly but I can't have! It's amazing that some people aren't greatful for the food they get everyday, but it's amazing that some people are greatful for the food they get everyday! But it's also amazing how incredibly greatful I am to have such a nice food blessing like this! So make the best out of your food!!
Thursday, 10 March 2011
My feelings for OTC
My OTC just keeps getting harder. I felt like I was going to pass out on monday because I didn't eat much of my school lunch and I was supposed to so that was dangerous for me. My parents are taking extra special care of me but I'm still upset that I have it. Today is thursday and I apsalutely loved the unch my parents gave me to take to school. The food was good and healthy for my OTC and it tasted good too. Whenever I get home from school I just eat. I'm mostly hungry when I get home but my meals are now prepared for me and I realy appreciate that. Now that I'm eating good I'm also feeling good, well, more like great! My school teacher now knows about my OTC and whenever I get hungry in class she just lets me it straight away. I don't even have to wait until break time, she just lets me eat straight away. I'm starting to get used to my OTC because it's not so bad after all. All you have to do is eat different foods. I feel so good with the food I'm eating! So it's actually not bad after all!
Saturday, 5 March 2011
My OTC
I have OTC, which means I cannot have any protein. It's difficult, but I absolutly don't mind; I'm very brave about it! I've gotten many achievements in my life and I'm realy proud of myself! If you're sick with an illness, then just think on the brighter side, you're special and unique! I don't put pressure on myself just because of OTC, I turn it into a special thing! I also have my parents helping me, which I'm really grateful for! So don't let illnesses get to you in life! Make the best out of them!
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