I'm Rachel, a 14 year old girl with OTC (Ornithine Transcarbamylase deficiency). I'm very brave about it, I've had a lot of achievements and I'm very proud of myself!
Ornithine Transcarbamylase Deficiency is a rare metabolic disorder. OTC affects my body's ability to get rid of ammonia, a toxic breakdown product of the body's use of protein. The accumulation of ammonia in my blood travels to vital organs in my body. Complications of OTC can include developmental delay, liver damage, brittle hair, mood swings and affect my performance at school. Having only one kidney further complicates my condition. Since my body cannot handle large amounts of nitrogen, a low-protein diet (38g/day) is essential. I also take sodium benzoate after every meal, which "mops up" excess nitrogen/ammonia.
Saturday, 28 May 2011
Cannot stand it anymore!
I know I always post positive things but not today! I cannot handle my OTC anymore! I can't eat yoghurt! I can't eat cheese grillers! I can't eat most things and it's horrible! I fell so frustrated! theres yoghurt in our household's fridge and it's not mine but it's making me feel so inconsidered! I don't know how to do it anymore! I can't even eat chocolate anymore and I can only have certain sweets! I don't know what to do anymore! I need to eat something different for once!
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