Ornithine Transcarbamylase Deficiency is a rare metabolic disorder. OTC affects my body's ability to get rid of ammonia, a toxic breakdown product of the body's use of protein. The accumulation of ammonia in my blood travels to vital organs in my body. Complications of OTC can include developmental delay, liver damage, brittle hair, mood swings and affect my performance at school. Having only one kidney further complicates my condition. Since my body cannot handle large amounts of nitrogen, a low-protein diet (38g/day) is essential. I also take sodium benzoate after every meal, which "mops up" excess nitrogen/ammonia.

Thursday, 29 December 2011

Meat-free Christmas dinner.

I haven't been blogging for a very long time. I must say, I miss NOT having my OTC so much, but, it's all gotten so easy throughout the year. I still love my vegetables so much! The Christmas dinner I had with my family the other day was delicious, even though there was so much meat, and the rest of my family was eating meat, except me, but, I didn't have any meat because I didn't want any meat. So thats all for today.

Thursday, 29 September 2011

End of the term

Today is Thursday the 29th of September, and today was the last day of the school term, and as a celebration, the junior school had a market day. They were selling sweets and candy and all that junk food and they had games. I took money to school today so that I could buy things from the stores. What I did was, I put my money together with my friend's money, and whatever we bought with our put-together money, we shared, just the two of us shared what we bought together. Both of our lunch-bags were almost full with junkfood, but luckily I didn't buy too much junk food. After the market day, my friend and I divided our sweets that we bought between the both of us, and all my other friends, including my one friend that I shared everything with, helped me watch and lookout for the protein levels on the backs of the packets of the sweets. I'm so thankful to all of those friends of mine who took their spare time to help me watch and lookout for the protein levels.

Thursday, 25 August 2011

Protein overloads

If I have too much protein, I could pass out and I could go into a coma, but those are not easy for me to make sure of, I'd have to eat about 10% of protein in a whole day to be able to do those, but, I can deffinitely start feeling nausious and feel a little bit like fainting. That happened to me 2 months ago, but after that I was absolutely and completely fine, and I felt much better after I took my medicine. This can happen to anyone with a disorder like mine, but, the reactions that your body can make from this can be solved fast.

Wednesday, 24 August 2011

The foods I love the most

I love all foods and meals, but if there are several foods that I had to pick for my favourites, I'd pick Spaggetti, Salad, fruit salad, and chicken and vegetables. Those would be my specific favourites. I hate to pick what I like, but it's better to say my favourites than to say I love all foods when I don't love all foods. All foods are different, and some foods are the same, but I like the best and the healthiest foods.

Tuesday, 23 August 2011

Not understanding

There are so many people I know out there who don't understand what my OTC is, and I do my best to help them understand, but then there are people who don't want to understand. To be around me for a whole day, a person has to try and understand my disorder, it's not really optional. Everyday, I try and act like a normal teeanger, and I don't even have to try, I've always just been a normal girl, besides my OTC, being a normal teenager isn't choice wise, it's just how I am, It's just how all teenage girls are. So, people just need to try their best to understand my disorder, but, if they don't want to, they don't have to, but it would be nessassary to try and understand it. It's the not understanding at all that will be harder, but it can be uderstood in an easier way for people who cannot not understand it no matter what.

Monday, 22 August 2011

Life's what you make it

Today I had a hard day at school, but, the delicious salad role my dad made me for lunch just made my day incredible! It was like biting a piece out of heaven, I just didn't want the salad role to finish. I deal with a very rare disorder, but it's a unique disorder. To those of you who have rare disorders, or even common disorders, you're special, the rest of the world is also special, but people like us with disorders are unique. You don't choose the body you get, or the special body chemicals that come with your body. You don't get to choose them, but you do get to make the most out of them. So, people with disorders have to do the same, except try harder, and it's totally worth it. Be smart with your body. With my OTC, I'm very smart with my body, my body has OTC, but, I'm still choosing what I want to do in my life, my body isn't choosing it for me, I'm choosing it, I'm just telling my body what I want to do. Even though I'm careful with my body, I'm still doing what I want to with my life, and you should do the same. When I first found out about my OTC, I thought to myself  ''Oh my word! Now I can't do anything with my life'', but, I was absalutely wrong about that! Don't let your body make life decisions for you, well, you can let your body make life decisions for you, but then make sure your body makes the right life decision, don't give up on yourself, your life, or your body. Make the right decisions or let your body make the right decisions for you, but as I said before, make sure your body makes the right decisions. And just remember, life's what you make it.

Sunday, 21 August 2011

It's just the way it is

It's just the way it is. There's no discussion about it, if I could, I'd eat anything I dared, but it's not worth risking my life. Eat what you want, it's totally your choice, my parents are allowed to eat what they want around me and I don't mind at all. The taste of white, creamy, milky, soft chocolate melting in your mouth can be so hard not to have, but that's what I have to do, and I absolutely do not mind. Have you ever tasted white hot chocolate? Oh my word! I had a teaspoon of it a month ago, and it felt like I was free, just because of one little teaspoon of it. I am a salad lover. I am obsessed with eating all kinds of the world's greatest salads. I'm very impressed with myself that I love salad so much! Actually, right now, I could really eat a salad, but I don't have any salad to eat, doesn't mean I can't make one. I actually can make one. I can make myself a greek salad, and maybe I will, but the point is, I am only allowed to eat certain foods, and all kinds of salads is one. So thank you to Cucumber, Tomatoe, Lettuce, Feta Cheese, Red, Orange, and Green pepper, and Vinigar, Olive Oil, and Mayonaise, a thousand island dressing, and all the famous salad sauces you get. Thank you to all the foods I can eat. It's all just the way it is.

Saturday, 28 May 2011

Cannot stand it anymore!

I know I always post positive things but not today! I cannot handle my OTC anymore! I can't eat yoghurt! I can't eat cheese grillers! I can't eat most things and it's horrible! I fell so frustrated! theres yoghurt in our household's fridge and it's not mine but it's making me feel so inconsidered! I don't know how to do it anymore! I can't even eat chocolate anymore and I can only have certain sweets! I don't know what to do anymore! I need to eat something different for once!

Saturday, 23 April 2011

Easter

Happy Easter everyone! I may not be able to eat chocolate eggs, but I will deffinitely be able to have a very fun Easter with my family with a nice sunday lunch! Happy Easter everybody!

Tuesday, 5 April 2011

Made a new friend

Since I've had OTC, I can't help it, I can only deal with it! It's just another way of saying ''vey tight diet'' and thats my simple way of putting it. I've just gotten a new friend on facebook and she also has OTC, thats pretty much how I found out about her, but she's such a friendly girl! We're also becoming great friends! She understands alot about OTC so I'm happy talk to her whenever I feel like it and just ask her anything about OTC. This girl is very good with OTC facts, I can tell! I'm mostly glad to have her as a friend that undestands me for the condition I have! Well, all I have to say is, I think I've made a new and good friend! One that can keep up with what I have to keep up with.

Sunday, 20 March 2011

It's amazing

It's amazing how my parents are helping me get through this OTC and it's amazing that everyday I get to be greatful to the Lord for all the special food blessings he blesses me with! But it's also very interesting how everyday I go to school and I see people with billtong or KFC chicken and they start giving it away and saying they don't want it because they hate it or they say they just want to share it! They should be greatful that they can eat alot of their foods! Everyday I go to school and I'm brave, I'm so brave to watch people eat food that I would like to have so badly but I can't have! It's amazing that some people aren't greatful for the food they get everyday, but it's amazing that some people are greatful for the food they get everyday! But it's also amazing how incredibly greatful I am to have such a nice food blessing like this! So make the best out of your food!!

Thursday, 10 March 2011

My feelings for OTC

My OTC just keeps getting harder. I felt like I was going to pass out on monday because I didn't eat much of my school lunch and I was supposed to so that was dangerous for me. My parents are taking extra special care of me but I'm still upset that I have it. Today is thursday and I apsalutely loved the unch my parents gave me to take to school. The food was good and healthy for my OTC and it tasted good too. Whenever I get home from school I just eat. I'm mostly hungry when I get home but my meals are now prepared for me and I realy appreciate that. Now that I'm eating good I'm also feeling good, well, more like great! My school teacher now knows about my OTC and whenever I get hungry in class she just lets me it straight away. I don't even have to wait until break time, she just lets me eat straight away. I'm starting to get used to my OTC because it's not so bad after all. All you have to do is eat different foods. I feel so good with the food I'm eating! So it's actually not bad after all!

Saturday, 5 March 2011

My OTC

I have OTC, which means I cannot have any protein. It's difficult, but I absolutly don't mind; I'm very brave about it!  I've gotten many achievements in my life and I'm realy proud of myself! If you're sick with an illness, then just think on the brighter side, you're special and unique! I don't put pressure on myself just because of OTC, I turn it into a special thing! I also have my parents helping me, which I'm really grateful for! So don't let illnesses get to you in life! Make the best out of them!