I'm Rachel, a 14 year old girl with OTC (Ornithine Transcarbamylase deficiency). I'm very brave about it, I've had a lot of achievements and I'm very proud of myself!
Ornithine Transcarbamylase Deficiency is a rare metabolic disorder. OTC affects my body's ability to get rid of ammonia, a toxic breakdown product of the body's use of protein. The accumulation of ammonia in my blood travels to vital organs in my body. Complications of OTC can include developmental delay, liver damage, brittle hair, mood swings and affect my performance at school. Having only one kidney further complicates my condition. Since my body cannot handle large amounts of nitrogen, a low-protein diet (38g/day) is essential. I also take sodium benzoate after every meal, which "mops up" excess nitrogen/ammonia.
Tuesday, 5 April 2011
Made a new friend
Since I've had OTC, I can't help it, I can only deal with it! It's just another way of saying ''vey tight diet'' and thats my simple way of putting it. I've just gotten a new friend on facebook and she also has OTC, thats pretty much how I found out about her, but she's such a friendly girl! We're also becoming great friends! She understands alot about OTC so I'm happy talk to her whenever I feel like it and just ask her anything about OTC. This girl is very good with OTC facts, I can tell! I'm mostly glad to have her as a friend that undestands me for the condition I have! Well, all I have to say is, I think I've made a new and good friend! One that can keep up with what I have to keep up with.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment